What would you do?
Here’s a story from a former volunteer at C.S. Mott Children’s Hospital in Ann Arbor, Michigan. We’d love to receive some responses
of how you would react in this situation!
__
Over my decade of volunteering I've interacted
with thousands of patients, but I’ll always remember my favorite, Penelope Washington *.
In the summer of 2005, I was prepping to have surgery at The University
of Michigan. Since I had volunteered and/or worked at Motts for years I decided
to volunteer as LONG as possible. During a couple special shifts I met a 3 year old patient named Penelope. There was
an immediate connection. Each time I saw her she was with her mom and grandma.
Originally I wasn't sure why she was in the hospital on the neurology floor, but
I learned quickly. During one of our adventures in the playroom she collapsed
and started having a grand
mal seizure. I immediately stepped back in fear and watched her mom and grandma
repeatedly call her name to get her attention. Externally her body was convulsing
and internally I was shaking. I don’t quite remember exactly how it ended, but
I do remember that we quickly returned to our game.
The next day Penelope and I were
playing in the special rice box (used dyed rice instead of sand since it was
easier to clean up). Out of nowhere she had another one of her seizures, but this
time she fell into my arms. I immediately looked for help. Her mom
and grandma stepped back and told me what to do. I repeatedly called her name
and asked her to look at me. We made eye contact. Seemed like hours the tiny girl
uncontrollably shook in my arms. Finally it stopped. Immediately she popped up
and said “ALL DONE!” and
pulled my hands to quickly get back to work; playing in the rice box followed
by drawing beautiful pictures.
That situation put everything into perspective. Amazing how this young
girl was able to quickly overcome her trials and focus on future opportunities.
Amazing how she was strong enough to immediately smile after that terrifying
experience rather than dwell on potential difficulties. Due to her I was able
to overcome my own situation the following month; left selective
amygdalohippocampectomy. Although that was over 8 years ago she still has an
impact. What was most surprising is that she felt that SHE was the lucky one.
Her mom, Bree*, stated that:
“I
remember like it was yesterday, the afternoon you carried her to the play room.
The Drs. had brought her up to toxic on another failed seizure med and she was
so weak she couldn't walk. You came and got her and took her to sit with you
and the other children. You were (are) her knight in shining armor. Sometimes,
in the most frightening experience we find a gift from God. And you…are ours.”
In terms of impacting pediatric
patients the statement must be true, ‘a little goes a long way’.
In fact, to this day I have a gift from her on my “inspirational wall”.
Wall includes:
1. Laminated
and framed Ann Arbor News article about a bowler who played her best game ever
after having brain surgery.
2. A mounted Booker
T Washington quote; ‘success is to be measured not so much by the position one
has reached in life as by the obstacles which he has overcome while trying to
succeed.’
And of course, right between those monuments is a laminated and framed picture Penelope made for me. On this masterpiece her mother wrote the text ‘All Done’ and signed Penelope’s name. Penelope delicately added a creative brown design at the bottom and two stunning orange circles at the top. The artwork also has a picture of her in a delicate white and red dress, as well as a special honeycomb sticker.
Still to this day, I remember how she peeled off the sticker she got
for being “good” and gave it to me as a gift. That sticker will remain framed
for all time. I’m still friends with Bree on Facebook and continually get
updates on how Penelope is doing
and how the medicine is impacting her. Thanks to her strength and encouragement
I was able to keep a smile on my face throughout my situation.
____
Cardz for Kidz! understands that there’s no way everyone can
connect with patients first hand and/or have a lasting relationship, but we'll continue to try and post pictures of the children you're impacting. Also, we try
to ensure that patients who don’t have a volunteer to come pick them up and
take them to the playroom are still uplifted so we send your cards. And since
the ‘gifts’ are delivered room to room, you can be sure that YOU are making a
difference.
With these partnerships, a lot of patients’ and
participants’ distress, discouragement and disappointment are ALL DONE!!
#alldone #upliftingspirits
Check out the post ‘TooSmall?? No Such Thing’ for another first hand story from a volunteer.
Please reach out if you have any special stories about connecting with a
hospitalized and/or traumatized child.
To see more pictures and stories please check out our
Facebook page, facebook.com/cardzforkidz or follow
us on Twitter @cardzforkidz
*modified
names due to HIPAA/Patient Privacy Regulations. In addition, we removed the author of the post's name due to those guidelines.
What an awe inspiring story! To read the story of such a strong-willed child is very humbling. So many of us are blessed in ways that we often forget when we experience tough times, and she was able to not only deal with a very scary condition, but play through it. I think it is a beautiful thing to be an inspiration to those children that maybe don't have the strong foundation of family, friends and volunteers. I look forward to participating in Cardz for Kidz! Keep up the good work!
ReplyDeleteI'm humbled by her resilience. It can be so easy to forget that adults are not the only people facing extremely difficult challenges. We can get so lost in chasing a career or paying bills or providing for others that we forget that there are children fighting disease and doing it with courage! I am so happy that Cardz for Kidz is a medium to uplift children battling illness. Penelope's story is a beautiful one and I'm greatful Cardz for Kidz is around to unite volunteers to uplift children. Excellence work!
ReplyDelete