Sorry, folks.
Here’s another one of those 100% biased blog posts that’s based on our
founder’s experience, #purplepride. As always with the blog
post, we must be 100% open and honest so here’s some insight. Originally we
started making some special deliveries to kids we connected with on Instagram
since we realized that this was one way we could work around the restrictions
that hospitals have with HIPAA (#intheroom). Plus we had some additional
cards AND we could reach some kids who may be overlooked. As mentioned in the Facebook Live video, there was some bias in
terms of the kids we were looking for, but now it’s opened up a bit more. Originally,
we were looking for some of these hashtags to find our kids to send cards to:
- #seizuressuck
- #epilepsysucks
- #pediatricepilepsy
- #specialneedskids
- #specialneedsmom
- #specialneedsdad
A lot of
people will probably say we’re reaching many children with “special needs.”
They need additional assistance based on their condition. Or one could say that
they have a “disability” based on their health situation. This ranges from the
children with cancer that we’ve sent cards to the kids overcoming autism.
Not sure if you recall, but WHEN WE GROW UP,
we’re going to work harder to reward these children even more—ensuring we’re
truly helping them as they’re overcoming their respective health conditions. Here’s a note from our founder:
“I recall the time I was
waiting to hear back from my doctor if I’d need to have another brain surgery.
It was definitely one of the top 3 most trying times that I’ve been through with
my epilepsy process. They told me this was the last medicine that we could try
and if it didn’t work that we’d need to do another brain surgery that could
have a larger impact OR we’d need to look to insert something into my brain to
control the frequency of the seizures. I was pretty shaken up and I was holding
on praying that the medicine would continue to work. I couldn’t drive and that
contributed to some setbacks in my career. Thankfully, to this day, the
medicine has been working and that situation has inspired me to help kids who
haven’t been as blessed as I was during that setback.”
Although that seems
tough, we’re sure some of the families we’ve been reaching would gladly
trade their situation for his. For example, the mother who sent a direct
message asking for cards since her daughter just got a second bout of cancer.
In our biased
opinion, we think there should be no politically correct way to describe people
who have a medical condition. Whether that’s a life-threatening condition or a
lifelong setback. Before we describe that please look at some of these
Instagram pictures:
Look at those
smiles! We’re not saying that all those families used the same hashtag, but in
our opinion they can all be defined the same way. Instead of being defined as
having special needs OR being defined as having a disability, we
think they should be combined and labeled as having the SPECIAL ABILITY to
overcome their situation and still smile. And we're very impressed!
#specialability
#upliftingspirits
Thanks! Are you interested in making cards?
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